In an effort to subdue my overwhelming frustration... this seems like a great idea.
Working in medicine you have somewhat of a "faith" that when something goes wrong... someone can fix it.
unfortunatley that hasn't happened for me.
I'll never forget one of the most brilliant doctors I have ever encountered telling me "I just don't know what's wrong...".
That is a scary posistion to be in.
So what's causing my hypoxemia... the lactic acidosis? Everyone has their theory, including one really big ........ ok... let's be professional .... no longer trusted MD telling me it was "anxiety"... (since when can anxiety cause a PO2 of 59? ON OXYGEN) it' can't... and two rather brilliant doctors telling me something is wrong... but we are all missing it.... but in the next breath telling me it "cant' be anything too serious"... why's that? becuase you didn't find it? that's not very reassuring... especially after I was intubated!
So... i've done my own investigations and they've led me to a clinic out of harvard med who's primary job is to diagnose lung disorders others can't. The doc himself (yes... the actual clinic director) emailed me back interested in spending some time trying to diagnose me.
Here's to hoping... because the constant question mark hanging in the air is starting to weigh on me.... and it's making the air thicker by the day.
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